Undiagnosed Conditions

[medicalmystery]

Hello,
In August 2007 I came down with fevers (up to 102.3 but usually 100.1), severe headaches that started at the base of my skull and wrapped around my entire skull, followed by extreme fatigue, and sweats with severe cold feet. Went back and forth from my GP, to ID dr., to ENT, and back to GP. Ct of head showed "minimal white matter disease" in September.

By January, an additional symptom of "intent" tremors of my hands and muscle fatigue started. All Lyme tests came back neg. as did Hep., mono., HIV but pituitary was low as well as thyroid. So possible pituitary tumor was mentioned. I insisted on an MRI

In March I received the brain MRI Dx. was "extensive demyelination of the white matter and plaques suggestive of MS".

Off to the first Neuro. Many blood tests (Elevated C-Reactive protein, high ANA), angio of the CNS, and a lumbar puncture come back fine with the exception of a single Oglioconal band (sp?).

I was sent to a Neuro. Immuneologist. He finds that I have a Vit. D level of 7, and a B12 below norm. also, C-reactive and ANA are higher, as well as platelet count. I also now have high blood pressure and high cholesterol, which I have never had before, but no answers except possible MS

I see an MS specialist. More MRI's, bloodwork. Sends me to Rheumatologist Rheumy sends me back to neuro after some bloodwork. MS Neuro sends me for a VEP test and that comes back normal.

I am now waiting on another brain, cervical and spine MRI series. I continue to deteriorate with the fevers, fatique, and tremors The muscle fatigue is becoming a problem, as well as with exertion, I go "numb" from my feet ascending up to my face. This disappears in the same order after about 15min. Also I have had "occular migraines" from time to time, which is new.

MS specialist is confused, as is the Rheumy. I have no idea which way to turn.

Both are now to the point of a brain biopsy.....

Thanks for listening!
Cris
(42yr. old mom of a 10yr. old Autistic daughter and a 5 yr. old typical son)